Tag Archives: Health

Caregiver Log: COVID-19

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My friend’s mother died on Monday, April 20, 2020, from COVID-19.

It is the first death from this disease in my social circle. But it will not be the last.

I spend my mornings helping my mother who is in late stage acute leukemia. Three days a week, she has blood tests to check if she requires a transfusion and two days a week she does. I am not allowed to accompany her into the cancer clinic or the infusion center because of the risk of transferring COVID-19.

As I wait in the car, I see people in various stages of cancer treatment come and go. Even the ones in wheelchairs are dropped in the roundabout and carted into the facility by masked and gloved staff. They range in age from their 40’s to 80’s. Some have hair, others don’t. Some can walk without help, others like my mom need a cane. Leukemia is the most common form of cancer in children 0-14 years of age, but they are at the children’s hospital. Continue reading →

Caregiver Log: Meantime

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A friend once said, “They call it the meantime for a reason…”

She was not referring to mean as meaning equivalency or purpose, but rather mean as in vicious and foul. And yes, enduring the decline in my mother’s health has been unpleasant. The knowing the end is coming but not knowing when or how is difficult. Yet, wishing for its end means only one thing.

Untreated Acute Leukemia does not go away on its own. Continue reading →

Caregiver Log: AML ODAT

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As a daily practice, at the start of my workday, I take a sticky note and write ‘ODAT’ across the top, ‘TMI’ down the left. No, not ‘Too Much Information’… ‘Three Most Important’ (TMI) and ‘One Day At a Time’ (ODAT).

One Day at a Time, is a platitude but it’s worth attention. ‘The Now’ is all there is. Dogs have this figured out. The past only exists in memory and the future doesn’t exist at all- the unchangeable past and unknowable future. And so, what to do with this right now? Allow anger at past injustice eat me alive and ruin today? Or fear of the future, the what-ifs of anticipated trouble?

Sometimes, they are almost impossible to escape. But the good or bad news is, healing happens in its time, not our time. We must accept what is true today. Continue reading →

Caregiver Log: Typhoid Mary

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I know people are bored with staying home in the wake of COVID-19. I know people are rightfully concerned about employment, bills, money, the economy. As I walk the grocery aisles, many are clearly too afraid and others not afraid enough. But in the midst of this pandemic, I am also preparing for the end of life care of my mother, who has acute leukemia.

‘Asymptomatic’ is what scares me. Continue reading →

View of living room with wood fireplace and attached sun room

Impending Beginnings

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I bought a condo.

I didn’t expect to until summer but on February 28, 2020, my partner and I sat in Sotheby’s International Realty office and signed a whole stack of papers allowing me to become a homeowner for the first time in my life. He’s old hat. They gave us a gift box with two Tiffany crystal wine glasses, a gold coin to get a bottle out of the champagne vending machine, and most importantly, a set of shining silver keys to the doors of our new home.

It is not lost on me that I moved into my current apartment in the wake of steep tragedy and I will move out of my apartment in the weight of impending tragedy. Continue reading →

Impending Ending

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2020 will be one of the most difficult years of my life.

And whenever you postulate on future events, there is always someone in the crowd with the need to say, “You don’t know that.” I think maybe they like being contrary or are often wrong or are interested in what they might consider to be a safe bet on telling you later, “I told you so!”

But I do know, so shut up, and let me speak.

Continue reading →

Mother’s Day

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I don’t really celebrate Mother’s Day because I am 400 miles away from my mom. Truthfully, I miss most holidays and celebrations. But I send cards. I call with my well wishes.

Mom has terminal blood cancer. It’s tough to write about Mother’s Day when your mother is dying, when it might well be the last. It’s not that she is on her death bed, but she is getting thinner and weaker every day. She is grinding to a halt. Continue reading →

Cycle St. Paul. Hills and All.

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I am seated on a steel bench just after lunch: June 25 at 12:30, hot sun, and worries about my sunburn getting worse. I cycle this university campus. Indeed, I was here 18 hours ago peddling my bike up the hill to the student center. I’ve cycled over 800 miles this season getting ready for RAGBRAI, most spent on the terrain of St. Paul. I hear a lot of groans from other cyclists when I tell them I choose to train here.

No really. I choose to ride these hills. Continue reading →

Outerwear

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No matter what the groundhog says, we are only halfway through winter. It is still 7 weeks to the vernal equinox and the astronomical start of spring. I have heard it said that there is no bad weather, only bad gear. These people have clearly never dealt with -55°F windchill.

Like most Minnesotans, I have multiples of all my winter outerwear: parkas, boots, hats, and gloves. I even have a sense of the temperature rating of my socks. You do not wear the same ones in 20°F as you do in -20°F. All cold climate residents will tell you, layering is the key to staying warm. Continue reading →

The Great Wide Open

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More than one person has said to me- take time. Be with your mom before the cancer makes her really sick. Plan a family vacation somewhere and make some quality memories together, one last time. We’ve been talking about what that might look like in practical terms of time, money, stamina, and risk of viral infection.

I love to travel. I am willing to travel just about anywhere in the world, for almost any length of time, for almost any reason. I am an adventurer at heart, an international explorer. One of the greatest gifts my father gave to me was his love for travel. It made me understand that there were other places, with a lot of other people who did not look or act like me. Continue reading →