Caregiver Log: Remote

I am new to remote work. I have resisted it for years, even though I am an IT professional and could contract my services.  But I never wanted my work stress to interfere with my home stress. Those two stresses always and forever needed to remain apart, simply so that I had one place to escape from the other. I know you working professionals understand.

My ‘worst fears’ have been confirmed- I feel the same stress in my home office as I do in my work cube. But this 2nd floor home office with a view and comfy chair is not my home. I am at a remote location in Illinois, staying with my generous sister. I have two rooms dedicated to my needs- a bedroom and a connected office with a table and a washer/dryer. I have my laptop, docking station, wireless internet, keyboard and mouse, and a large standalone monitor- every writers dream! Read more…

Caregiver Log: Awaiting Censure

My mother has Acute Leukemia and is nearing the end of her life. She now receives platelet transfusions about twice a week because her blood platelet count is constantly less than 15. The minimum normal platelet count is 133.

I live in Minnesota and she lives in Illinois. I am one of the lucky ones. I have a job I can work remotely and some paid FMLA leave to care for her during this time. When I left Minnesota, I was healthy. At the time, my community had low COVID-19 infection rates per capita.

I drove straight though, taking a record 6.5 hours to travel the 430 miles. I stopped only for gasoline and bathrooms in small town Iowa, avoiding truck stops. I used paper towels on the pumps and my sweater sleeve wrapped hand inside the gas stations. Read more…

Caregiver Log: Typhoid Mary

I know people are bored with staying home in the wake of COVID-19. I know people are rightfully concerned about employment, bills, money, the economy. As I walk the grocery aisles, many are clearly too afraid and others not afraid enough. But in the midst of this pandemic, I am also preparing for the end of life care of my mother, who has acute leukemia.

‘Asymptomatic’ is what scares me. Read more…