Caregiver Log: COVID-19

My friend’s mother died on Monday, April 20, 2020, from COVID-19.

It is the first death from this disease in my social circle. But it will not be the last.

I spend my mornings helping my mother who is in late stage acute leukemia. Three days a week, she has blood tests to check if she requires a transfusion and two days a week she does. I am not allowed to accompany her into the cancer clinic or the infusion center because of the risk of transferring COVID-19.

As I wait in the car, I see people in various stages of cancer treatment come and go. Even the ones in wheelchairs are dropped in the roundabout and carted into the facility by masked and gloved staff. They range in age from their 40’s to 80’s. Some have hair, others don’t. Some can walk without help, others like my mom need a cane. Leukemia is the most common form of cancer in children 0-14 years of age, but they are at the children’s hospital. Read more…

Caregiver Log: Remote

I am new to remote work. I have resisted it for years, even though I am an IT professional and could contract my services.  But I never wanted my work stress to interfere with my home stress. Those two stresses always and forever needed to remain apart, simply so that I had one place to escape from the other. I know you working professionals understand.

My ‘worst fears’ have been confirmed- I feel the same stress in my home office as I do in my work cube. But this 2nd floor home office with a view and comfy chair is not my home. I am at a remote location in Illinois, staying with my generous sister. I have two rooms dedicated to my needs- a bedroom and a connected office with a table and a washer/dryer. I have my laptop, docking station, wireless internet, keyboard and mouse, and a large standalone monitor- every writers dream! Read more…

Caregiver Log: Awaiting Censure

My mother has Acute Leukemia and is nearing the end of her life. She now receives platelet transfusions about twice a week because her blood platelet count is constantly less than 15. The minimum normal platelet count is 133.

I live in Minnesota and she lives in Illinois. I am one of the lucky ones. I have a job I can work remotely and some paid FMLA leave to care for her during this time. When I left Minnesota, I was healthy. At the time, my community had low COVID-19 infection rates per capita.

I drove straight though, taking a record 6.5 hours to travel the 430 miles. I stopped only for gasoline and bathrooms in small town Iowa, avoiding truck stops. I used paper towels on the pumps and my sweater sleeve wrapped hand inside the gas stations. Read more…

Caregiver Log: Typhoid Mary

I know people are bored with staying home in the wake of COVID-19. I know people are rightfully concerned about employment, bills, money, the economy. As I walk the grocery aisles, many are clearly too afraid and others not afraid enough. But in the midst of this pandemic, I am also preparing for the end of life care of my mother, who has acute leukemia.

‘Asymptomatic’ is what scares me. Read more…