I don’t really celebrate Mother’s Day because I am 400 miles away from my mom. Truthfully, I miss most holidays and celebrations. But I send cards. I call with my well wishes.
Mom has terminal blood cancer. It’s tough to write about Mother’s Day when your mother is dying, when it might well be the last. It’s not that she is on her death bed, but she is getting thinner and weaker every day. She is grinding to a halt.
I read an incredible poem once, “Our Lady of Perpetual Loss” by Deborah A. Miranda that suggests the death of the mother is the worst one must endure. But I know better. There is no consolation for parents who lose a child. There is no consolation for a child who loses a parent.
It is hard for me to imagine a more difficult death than my father. I was 12. He was 50. I was old enough to understand what had happened but so young that I did not have the capacity or experience to process it. It stands as the most traumatic experience of my life.
My mother has lived a full life and at age 78, she is of an age. She is at the time in life when one might expect its end. Still, I know the loss of her will crush me. She is my life giver and the person I met first. You only get one mom.
Back in January 2013, my mother had a doctor’s appointment to look at an irritation she had in her mouth. But a week before she could get in, my childhood home burned. She was homeless. She cancelled that appointment and did not get examined for another few months.
The irritation turned out to be squamous cell carcinoma (SCC) of the tongue.
She had surgery to remove the lesion and was diagnosed. In September of that year, she had more surgery to remove those parts of her tongue that had cancer. They also removed her lymph node to check for migration. The hope of course was that the cancer was in its early stages, that her speech and ability to swallow would not be greatly affected, and that the cancer was localized to her mouth.
The surgery went very well, and she was sent home two days later. We lucked out with the speech and swallowing but not so with it staying localized… The lymph node indicated that the cancer had spread to other parts of the body. There was no way to know where until it appeared again. As a precaution, she opted for radiation and chemotherapy. Eventually, the treatment ended, and she was declared ‘cancer free’. But unfortunately, there is a known risk for ten years post-radiation of developing myelodysplastic syndrome (MDS)…
She developed MDS five years later.
When mom called in May of last year and told me that all of her blood counts were down, I knew. I had spent years editing a book about leukemia treatment. If your red cells and white cells and platelets are all low, you have blood cancer. I was relieved that it was only MDS, not leukemia. But the result is the same. They are both blood cancers and the only cure is a stem cell transplant (bone marrow transplant). Mom is too old. She would never survive it.
There are seven sub-types of MDS with varying survival outcomes. I struggled to get the answers I needed about her condition long distance. She would forget to ask the doctor for the information and when she did get information, it was not specific enough for me. I needed to know exactly what type of MDS she has and how long she was expected to live.
In December 2018, I met with her medical team and they told me that she has myelodysplastic syndrome with multiple cytogenetic abnormalities. My mother is in the high-risk group which gives her a life expectancy of about a year and a half after diagnosis. She was diagnosed in May 2018.
We are at the one-year mark.
If you do the math, it makes the coming holiday season a bit foreboding. What will Christmas look like? I have caught myself imagining life after my mother goes. I think this is all part of the pre-grief, trying to process the inevitable.
Grief can trap you in time. Grief can steal years of your life away. Grief kills people.
But truthfully, anyone can die at any time. A dear friend has said to me, “You don’t have to wait for the other shoe to drop. It’s going to.” In other words, live without the grip of your fear of pain because pain is coming. Tomorrow is guaranteed to no one which is why we must live in the present, just this one day, and not anticipate trouble so much it sucks all the joy out of it. Fill the cup of life with as many good memories as possible to see you through the darkness.
It’s not just that life goes on… Life must go on. We must choose it.
And so, we do. Last month, mom traveled to Louisiana to meet her first great grandchild at 4 months of age. And in June, she will attend her 61st high school class reunion. We also have a fabulous road trip planned around her 79th birthday that will include beaches and margaritas. We can sit and enjoy our time together.
I pray we are given more than we dare hope…
-Copyright C.M. Mounts, May 2019