Tag Archives: Death

Holiday Hindsight

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You might be thinking, “Why are you writing about Christmas? That ended two weeks ago.”

And you would be wrong. The Christmas holiday season ends on January 5,6, or 13 depending on your cultural and/or religious traditions. I define Christmastide as December 25 to January 5, the 12th night and the Feast of the Epiphany which runs into January 6, Three King’s Day which is widely celebrated in Latin America.

Yes, the ‘Twelve Days of Christmas’ is not just a Christmas carol about insane gift expectations. And with the shipping overload COVID-19 put on USPS, it’s a good thing. Gifts arrived during Christmastide, but maybe not by December 25. But no matter because gifts are not really the point.

Our end of year festivals have been celebrated in one way or another in the Northern Hemisphere for millennia, because of the winter solstice. It is not pagan to celebrate the return of the light. It is astronomy, the very physical reality of our planet’s axis. It is also a celebration of a life preserving harvest, of family and community before we all hibernate for winter and try not to starve. This perspective has been lost with the technological advances of the modern world. But if this year has taught me anything, it’s how quickly we can revert to an earlier way of life.

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Caregiver Log: Safe Travels

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My mom’s 80th birthday is this week.

At least, it would have been. She died on Mother’s Day. She was 79 years, 10 months, and 23 days old. Leukemia took her or rather the malfunction of the body that leukemia causes. Near the end, I took an armpit temperature of 103 degrees because she was unconscious and her jaw was clenched. You can add 1-2 degrees to that for her actual temperature. Children’s cherry liquid Tylenol was no match for it. Systemic infection probably ended her life.

And it was a fast, peaceful death in her own bed, with her family. We were able to have a COVID-19 social distance visitation at the funeral home. There were so many beautiful flowers and quite a few people came to pay their respects. Her funeral was a private, gravesite service, followed by a family luncheon afterward. We even had a cake and candles for my nephew whose 35th birthday was the same day as the visitation.

Life must go on. Continue reading →

Caregiver Log: Last Call

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My mother turns to me as we sit in the transfusion center, IV pumping platelets into her vein, to say “This will probably be the last time.” That was Friday May 1st.

On Monday May 4th, I check on her at 4am and she insists she needs a shower. I foolishly and half asleep agree to help her. She seems lucid. I have not yet learned to expect high fever and recognize delirium first thing in the morning. It is a disaster in which I am able to help her into the shower, begin to wash her, then have her tell me to turn it off and insist she is not in the shower. “I’m pretty sure you’re in the shower, mom.” Moving her out and putting her back in bed is a struggle and she almost falls to the floor. She can’t walk. Her knees give out and she is slippery. I put her in bed, give her meds, and tell her I will return.

At 7am, the fever is gone and I feed her. When my sister Maureen arrives to help me dress her and take her to the appointment, mom says, “I don’t think I can do it.” But I am determined. Whatever it takes, come hell or high water, we will get her to the cancer care center for her labs.

Then high water comes. Continue reading →

Caregiver Log: hospice

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My mother is in end stages of Acute Leukemia. Infections are the leading cause of death for AML patients, followed by hemorrhaging. If you have a fever, you can’t get a blood test. If you can’t get a blood test, you can’t get a transfusion. If you can’t get a transfusion, you can not survive.

And here we are.

Mom’s fever has hovered between 101-102 since Saturday. No Tylenol or time can break it. Monday morning, she was too weak to get into the car to go to the cancer care clinic. She is complaining about pain, the result of an infection in her ear and gums. This is a persistent issue that her lack of white blood cells can not fight off. We call for antibiotics, but the medical profession has tunnel vision… the fever might be a virus… might be COVID-19… Continue reading →

Caregiver Log: COVID-19

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My friend’s mother died on Monday, April 20, 2020, from COVID-19.

It is the first death from this disease in my social circle. But it will not be the last.

I spend my mornings helping my mother who is in late stage acute leukemia. Three days a week, she has blood tests to check if she requires a transfusion and two days a week she does. I am not allowed to accompany her into the cancer clinic or the infusion center because of the risk of transferring COVID-19.

As I wait in the car, I see people in various stages of cancer treatment come and go. Even the ones in wheelchairs are dropped in the roundabout and carted into the facility by masked and gloved staff. They range in age from their 40’s to 80’s. Some have hair, others don’t. Some can walk without help, others like my mom need a cane. Leukemia is the most common form of cancer in children 0-14 years of age, but they are at the children’s hospital. Continue reading →

Caregiver Log: Meantime

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A friend once said, “They call it the meantime for a reason…”

She was not referring to mean as meaning equivalency or purpose, but rather mean as in vicious and foul. And yes, enduring the decline in my mother’s health has been unpleasant. The knowing the end is coming but not knowing when or how is difficult. Yet, wishing for its end means only one thing.

Untreated Acute Leukemia does not go away on its own. Continue reading →

Caregiver Log: AML ODAT

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As a daily practice, at the start of my workday, I take a sticky note and write ‘ODAT’ across the top, ‘TMI’ down the left. No, not ‘Too Much Information’… ‘Three Most Important’ (TMI) and ‘One Day At a Time’ (ODAT).

One Day at a Time, is a platitude but it’s worth attention. ‘The Now’ is all there is. Dogs have this figured out. The past only exists in memory and the future doesn’t exist at all- the unchangeable past and unknowable future. And so, what to do with this right now? Allow anger at past injustice eat me alive and ruin today? Or fear of the future, the what-ifs of anticipated trouble?

Sometimes, they are almost impossible to escape. But the good or bad news is, healing happens in its time, not our time. We must accept what is true today. Continue reading →

View of living room with wood fireplace and attached sun room

Impending Beginnings

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I bought a condo.

I didn’t expect to until summer but on February 28, 2020, my partner and I sat in Sotheby’s International Realty office and signed a whole stack of papers allowing me to become a homeowner for the first time in my life. He’s old hat. They gave us a gift box with two Tiffany crystal wine glasses, a gold coin to get a bottle out of the champagne vending machine, and most importantly, a set of shining silver keys to the doors of our new home.

It is not lost on me that I moved into my current apartment in the wake of steep tragedy and I will move out of my apartment in the weight of impending tragedy. Continue reading →

Impending Ending

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2020 will be one of the most difficult years of my life.

And whenever you postulate on future events, there is always someone in the crowd with the need to say, “You don’t know that.” I think maybe they like being contrary or are often wrong or are interested in what they might consider to be a safe bet on telling you later, “I told you so!”

But I do know, so shut up, and let me speak.

Continue reading →

Frozen Turkey

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It’s OK to serve pre-prepped bake in the bag frozen turkey this Thanksgiving.

I am talking to the cooks now. If you have never run the gauntlet that is cooking Thanksgiving dinner or if stove top stuffing with brown and serve sausage is your heirloom family recipe, you can skip the rest of this blog post.

But if you really cook…

If you would prefer a fresh turkey from the butcher (if you could afford it)…
If you intentionally buy overlarge birds specifically for leftovers…
If you inject or marinate or brine your turkey with a concoction of your own special design… Continue reading →