Tag Archives: Cancer

Mother’s Day

I don’t really celebrate Mother’s Day because I am 400 miles away from my mom. Truthfully, I miss most holidays and celebrations. But I send cards. I call with my well wishes.

Mom has terminal blood cancer. It’s tough to write about Mother’s Day when your mother is dying, when it might well be the last. It’s not that she is on her death bed, but she is getting thinner and weaker every day. She is grinding to a halt. Continue reading

Stuff

I bought a dresser.

When I walked into my apartment on May 11, 2013 after a fire incinerated everything that I owned, I had little more than a garbage bag of clothes, a grocery bag of canned goods, an alarm clock, and a cot. The only piece of furniture I still had was a kitchen island with bar chairs that had remained in my car in its original box. I could not carry it up the three flights of stairs to my loft with a herniated back, so it survived and serves as my kitchen table now. Continue reading

Wardrobe

My mother has terminal blood cancer (MDS). Year 2020 is not guaranteed to her. If I were being honest, year 2020 is not guaranteed to any of us. I live 400 miles away and she is not online, so the telephone is all I have. Calls have become more frequent as I try to support her during the twilight of her life.

A recent conversation came up around the subject of clothing. She said she needs to buy some clothes but didn’t want to waste the money because she’s at the end. I told her to go out and buy designer clothes. It’s not as if you can take your money with you and just because you feel like shit does not mean you have to look like shit.

In all seriousness, if not now when? Continue reading

The Great Wide Open

More than one person has said to me- take time. Be with your mom before the cancer makes her really sick. Plan a family vacation somewhere and make some quality memories together, one last time. We’ve been talking about what that might look like in practical terms of time, money, stamina, and risk of viral infection.

I love to travel. I am willing to travel just about anywhere in the world, for almost any length of time, for almost any reason. I am an adventurer at heart, an international explorer. One of the greatest gifts my father gave to me was his love for travel. It made me understand that there were other places, with a lot of other people who did not look or act like me. Continue reading

P.S. 2018

I love winter. I must since I chose to move north to Minnesota 15 years ago. It’s not the cold, it’s the 3 solid months of writing and reading with very little distraction. Cycling does not lure me out onto the forested trails and social invitations slow down to a crawl. No one wants to leave their home either and that’s fine.  I have plenty of paper and ink to spare.

Last winter, I committed to waking up at 5am and working on my novel before work. I had a smoke damaged, sooty copy of a 2nd draft I wrote 10 years before. It was somewhere to start. So, I scanned the 263-page document using optical character recognition software and imported that into Scrivener. After 1.5 months of work, it was formatted and cut up into sections, chapters, and scenes. Continue reading

Life as I know it: November 10, 2018

Life as I know it is this: My mother has a terminal blood cancer diagnosis (MDS). I am an artist with a professional career in IT. I am dog person living alone with two cats. And I burn with deep pain and passions that frequently erupt into the quiet practice of writing.

What is the function of my blog in my life? I consider the direction it has taken. I have many poems, hundreds probably, and have posted them here. I could keep up with that work, but I feel the call to something different.

My friend Todd blogged his personal journey through blood cancer- from his leukemia diagnosis to untimely death. It is a body of work I believe has helped others on that same journey (Popcorn from the Void). In the coming months, I intend to write about my own journey through grief alongside my creative writing. Continue reading

Popcorn from the Void: one-year anniversary

July 10, 2018 was the one-year anniversary of the publication of Popcorn from the Void– my friend Todd Park’s memoir that I edited from his blog. The proceeds from the sale of this book go to support various cancer charities. It’s been doing well for a self-published book about such a serious topic: the arduous journey of a bone marrow transplant and the untimely death of its author. Continue reading

Travel Log: Thunder Bay, Ontario

June 8-11, 2018 ~ 840 miles

Minneapolis, MN; Duluth, MN; Two Harbors, MN; Grand Marais, MN; Thunder Bay, ON

It’s still under debate whether or not I had visited Thunder Bay, Ontario before last weekend’s trip. The confusion is about whether or not I was included in what family lore now refers to as the ‘vacation from hell’. I would have been less than one year in age, if I was alive at all, and somehow being present as an infant or a toddler with no memory of anything or anyone still counts as me having visited. For further explanation of that logic, I will refer you to my mother…

Mom has cancer, again. On May 23, 2018 she was given the diagnosis of Myelodysplastic syndromes (MDS) which is a group of blood cancers sometimes referred to as ‘pre-leukemia’ and requires chemotherapy. Since the effects of the chemo on her life are yet unknown, she made the decision that she wanted one more vacation before she might become unable to travel. It had been about 45 years since her last trip to Thunder Bay and since I live in Minnesota, off we went. Continue reading

Empty hospital bed with bowl of popcorn on the stand

Twin Cities Book Festival 2017

I am exhibiting at the Twin Cities Book Festival this year as an editor not an author. I am showcasing the posthumous memoir Popcorn from the Void by Todd Park. Unfortunately, Todd is not here to promote the book himself so I will serve as his stand-in. Find me at table 410!


Book Festival special: Buy a book for $10 & get a free 1oz bag of Smartfood popcorn

Location: Progress Center of the Minnesota State Fairgrounds, 1265 Snelling Ave, Saint Paul, MN.

Date/Time: October 14, 10am-5pm

Admission: Free!

Download the Twin Cities Book Festival program

Stack of paper drafts with edits

To Edit a Book

I am an accidental editor.

My friend Todd Park was diagnosed with Acute Myeloid Leukemia (AML) in February 2013. An avid writer, he wrote entries in his blog from his diagnosis until 24-hours before his death, caused by treatment related side effects, on December 16, 2013. The blog survives as a harrowing and honest chronicle of his journey through his cancer treatment.

Early in 2014, something began to gnaw at me- What will happen to Todd’s blog? It needs to be a book but who will edit it? Who indeed. I contacted Todd’s brother John and asked permission to convert his blog into a memoir. John agreed. Continue reading