Tag Archives: MDS

Wardrobe

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My mother has terminal blood cancer (MDS). Year 2020 is not guaranteed to her. If I were being honest, year 2020 is not guaranteed to any of us. I live 400 miles away and she is not online, so the telephone is all I have. Calls have become more frequent as I try to support her during the twilight of her life.

A recent conversation came up around the subject of clothing. She said she needs to buy some clothes but didn’t want to waste the money because she’s at the end. I told her to go out and buy designer clothes. It’s not as if you can take your money with you and just because you feel like shit does not mean you have to look like shit.

In all seriousness, if not now when? Continue reading →

The Great Wide Open

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More than one person has said to me- take time. Be with your mom before the cancer makes her really sick. Plan a family vacation somewhere and make some quality memories together, one last time. We’ve been talking about what that might look like in practical terms of time, money, stamina, and risk of viral infection.

I love to travel. I am willing to travel just about anywhere in the world, for almost any length of time, for almost any reason. I am an adventurer at heart, an international explorer. One of the greatest gifts my father gave to me was his love for travel. It made me understand that there were other places, with a lot of other people who did not look or act like me. Continue reading →

P.S. 2018

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I love winter. I must since I chose to move north to Minnesota 15 years ago. It’s not the cold, it’s the 3 solid months of writing and reading with very little distraction. Cycling does not lure me out onto the forested trails and social invitations slow down to a crawl. No one wants to leave their home either and that’s fine.  I have plenty of paper and ink to spare.

Last winter, I committed to waking up at 5am and working on my novel before work. I had a smoke damaged, sooty copy of a 2nd draft I wrote 10 years before. It was somewhere to start. So, I scanned the 263-page document using optical character recognition software and imported that into Scrivener. After 1.5 months of work, it was formatted and cut up into sections, chapters, and scenes. Continue reading →

Life as I know it: November 10, 2018

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Life as I know it is this: My mother has a terminal blood cancer diagnosis (MDS). I am an artist with a professional career in IT. I am dog person living alone with two cats. And I burn with deep pain and passions that frequently erupt into the quiet practice of writing.

What is the function of my blog in my life? I consider the direction it has taken. I have many poems, hundreds probably, and have posted them here. I could keep up with that work, but I feel the call to something different.

My friend Todd blogged his personal journey through blood cancer- from his leukemia diagnosis to untimely death. It is a body of work I believe has helped others on that same journey (Popcorn from the Void). In the coming months, I intend to write about my own journey through grief alongside my creative writing. Continue reading →